I found out one of my friend's granddaughter's was born with Apert's Syndrome. I had no idea what Apert's Syndrome was, so I researched a bit and found out it is a dominant autosomnal trait, meaning only one parent has to have the gene to pass it on. It is genetic, and it causes cleft lips, facial weakness, webbing of the fingers and other defects.
Of course, when you have a child you expect the world for them. And when a child is born with a genetic defect, it alters your expectations, and sends you reeling. I wanted to do something for this first time Mom, who is currently suffering, and for her baby girl.
Nicholas Graves, Apert Syndrome Poster Child |
The Little Baby Face Foundation provides corrective surgery and medical services, family support, physician education, and research.
I know as time passes, this new mother will begin to accept the different future for her sweet daughter. She'll look at her with new eyes, and she'll see her inner and outer beauty. Dealing with alopecia areata has taught me that sometimes acceptance comes slowly, but it almost always comes.
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